Region 4 Genetics Collaborative
Source
Gebetic Alliance webinars
Description
The Region 4 Genetics Collaborative provides a bridge between public health, primary care providers, genetic specialists, and families of children who have genetic conditions, to identify issues and plan and implement strategies to improve the quality of newborn screening and genetic services, and access to those services. During this session Region 4 team will discuss the region's work to 1) increase access to information about newborn screening and genetic resources, services, and family support systems; 2) facilitate data collection and analysis to guide decision-making on screening cut-diagnosis, and long term treatment of heritable disorders; 3) support public health agencies; 4) provide forums to share best practices and models for improving newborn screening, follow-up, and genetic care coordination; and 5) link Region 4 states with regional and national initiatives.PowerPoint Presentation
Original webcast: September 30, 2009
Date Added
November 12, 2009
Keywords
Region 4 Genetics Collaborative, genetic alliance webinars,
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