Responsible Genetics Research with Cultural and Linguistic Minority Groups
Author(s)
Christina Palmer, Patrick Boudreault, Yoko Kobayashi
Document Description
Genetics research involving communities has raised concerns about the impact of research on these communities. This presentation describes a framework for conducting responsible genetics research in cultural and linguistic minority groups that combines a biomedical approach with a deaf studies approach. We illustrate its application to a novel cross-cultural multidisciplinary project assessing the impact of genetic testing on deaf individuals and the deaf community. This approach promotes community participation and implementation of quality of genetic counseling services, and other health care.
Date Added
June 27, 2009
Keywords
genetic alliance conference 2009, discovering openness in health systems, deaf community, minority groups, genetics research, community involvement, community advocacy, deaf genetics project
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Document Description
Genetics research involving communities has raised concerns about the impact of research on these communities. This presentation describes a framework for conducting responsible genetics research in cultural and linguistic minority groups that combines a biomedical approach with a deaf studies approach. We illustrate its application to a novel cross-cultural multidisciplinary project assessing the impact of genetic testing on deaf individuals and the deaf community. This approach promotes community participation and implementation of quality of genetic counseling services, and other health care.
Date Added
June 27, 2009
Keywords
genetic alliance conference 2009, discovering openness in health systems, deaf community, minority groups, genetics research, community involvement, community advocacy, deaf genetics project