Registry and Repository Start-up Guide
Author(s)
Liz Horn, Genetic Alliance BioBank
Document Description
This guide asks 54 questions about things to consider when creating a registry or repository. Areas of focus include determining what data or samples to collect, processes and infrastructure for collecting data or samples, organizational structures for collection, and governance. This guide is divided in 3 sections: What will you collect? How will you collect it? What else is needed? We hope this guide will help you in your registry and repository planning.
Date Added
January 14, 2010
Keywords
Boot Camp, biobank, registry, Genetic Alliance BioBank, guide, biorepository
Return to search results
Document Description
This guide asks 54 questions about things to consider when creating a registry or repository. Areas of focus include determining what data or samples to collect, processes and infrastructure for collecting data or samples, organizational structures for collection, and governance. This guide is divided in 3 sections: What will you collect? How will you collect it? What else is needed? We hope this guide will help you in your registry and repository planning.
Date Added
January 14, 2010
Keywords
Boot Camp, biobank, registry, Genetic Alliance BioBank, guide, biorepository