CHARGE Syndrome Management Manual
Author(s)
Meg Hefner, M.S., Sandra Davenport, M.D
Document Description
The manual is an "interactive" publication. Version 2.1 consists of over 200 pages, printed and punched to fit a 3-ring binder (you supply the binder and dividers for the sections). There are sections directed to the professionals and others to the parents. Includes a Medical Visit Pad. (Available in Spanish.)
What do you get in the manual?
* History of the CHARGE Syndrome Foundation
* Stories from 10 families, newborn to adult
* Medical information (over 100 pages, originally version 1.0)
o Revised diagnostic criteria
o Prenatal ultrasound information
o Sections for your doctors (to photocopy and take to them)
o Sections for parents (so you understand what's going on)
* Developmental and Educational information (100 new pages in version 2.0)
* Glossary (17 pages of defined medical terms)
* Resources
o Deafblind
o Educational
o Medical
and more!
Date Added
July 2, 2010
Keywords
CHARGE syndrome, colobomas, choanal atresia, management, CHARGE association, chd7
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Document Description
The manual is an "interactive" publication. Version 2.1 consists of over 200 pages, printed and punched to fit a 3-ring binder (you supply the binder and dividers for the sections). There are sections directed to the professionals and others to the parents. Includes a Medical Visit Pad. (Available in Spanish.)What do you get in the manual?
* History of the CHARGE Syndrome Foundation
* Stories from 10 families, newborn to adult
* Medical information (over 100 pages, originally version 1.0)
o Revised diagnostic criteria
o Prenatal ultrasound information
o Sections for your doctors (to photocopy and take to them)
o Sections for parents (so you understand what's going on)
* Developmental and Educational information (100 new pages in version 2.0)
* Glossary (17 pages of defined medical terms)
* Resources
o Deafblind
o Educational
o Medical
and more!
Date Added
July 2, 2010
Keywords
CHARGE syndrome, colobomas, choanal atresia, management, CHARGE association, chd7